Damn Liver

Living with PSC & UC

Tick Tock, Tick Tock…

The clock on the wall has been stuck at 3 for days and days….mostly because I took the batteries out of the clock. It drives me nuts. The constant tick tock throughout the night. Not even the morphine can drown it out. They say home is where the heart is, and that really is no lie. I can tell it that it is not for sure here at this hospital. Although, I have some lovely nurses and a great care team but I would much rather be home. I never thought at 34 years old that I would be dealing with something so complicated. But on the other hand, I never thought at 34 years old that I would be successful in business and be able to provide a good life for my wife and kids. It’s a lot of work, there is no doubt. But through it all, family is so important and we should always never take even the smallest moments for granted.

The past few weeks have been rough. What started out as a normal routine ERCP to remove a stent, turned into a week long hospital stay, followed by another week (this week). So what happened? Back in March 2016, I had a stent placed in the common bile duct due to a stricture that wouldn’t open. The stent was meant to be temporary. My GI Doctor decided that in 2 months that we would remove the stent and try not to place another one due to an increased risk of infections. May 23rd, I traveled to Dallas to have my procedure to get the stent removed the following morning. The procedure appeared to go well. Afterward, I went to my sister’s home where we ate some Japanese Udon noodles and just sat around and talked. But that night, I began to run a fever. Fever is the sign. The sign of more issues to come. We decided to watch the fever that night, but by morning the fever was worse and there was pain associated with the fever in the upper right quadrant area (liver). My Infectious Disease Doctor put me in the hospital immediately and began to infuse IV Antibiotics. We watched the numbers for the rest of the week. My Blood Cultures tested positive for Enterococcus Faecium. This wasn’t easily cured as it has resistance to a lot of antibiotics. So we battled it with Zyvox which seemed to do the trick.

—Enterococcus Faecium—

https://en.wikipedia.org/wiki/Enterococcus_faecium

Later on in the week I began to feel better. And usually even if I really don’t feel better, I try to convince myself that I do so that I can get home to see my kids and my wife who are always patiently waiting for me.

When I arrived home, I continued the oral Zyvox for a number of days. I went to work at the office and felt fine for the most part other than the fatigue but then again that’s always an issue with me so its hard to tell. But Saturday morning I woke up not feeling well. My wife and I dropped the kids off at my parents so that we could get some things setup in our flea market booth. After carrying a few items, I just looked at Ashlee and told her that I needed to go home and lay down. My abdomen and back were hurting so bad. A lot of pressure and caused me to have a really bad headache. I could feel the chill in my bones coming on. The fever. Yes, that pesky little thing called fever.

When we arrived at home, we laid in our bed and watched 15 or so episodes of Homeland. Which is a really good show by the way. But when I looked at the clock it was 6:00PM and my fever was at 102.8. Time to do something. I sent a message to one of my doctors. He wanted me to get blood cultures. But where? Everything was closed. Except CHI St Vincent ER. It just so happened that my little brother and sister were working that night. My younger brother Andrew started my IV and took the blood cultures while my younger sister looked over his shoulder trying to find something wrong with what he was doing :). Of course!. The labs came back. Verdict. Defiantly something going on in the liver. My Alk Phos was over 895, Bilirubin was 3.4 and rising, and all other labs were out of whack. Due to the complicated nature of my disease, CHI didn’t want to keep me there. The transferred me to my team at Baylor. The next morning my father drove me down to Dallas to be admitted to Baylor. We had a good drive down, other than the pain. I love having long talks with my dad. We don’t get to do it that often but he’s just a really kind hearted person and he loves me I can tell you that much.

We arrived at Baylor, and pretty much had a room waiting for us when we got here. We came upstairs and got settled into my new home for the week. My dad stayed with me most of the day but I could tell he was so tired. I told him that afternoon to go to my sisters and have a nice dinner and get some rest.

Meanwhile, at the hospital, they were running tests after tests. One verdict came back, blood culture positive forPseudomonas Aeruginosa. Yea try to say that 5 times fast. It’s not really a good thing to have. It’s known to be hard to get rid of because of its resistance to most antibiotics. So we are battling this one day at a time.

—Pseudomonas Aeruginosa—

https://en.wikipedia.org/wiki/Pseudomonas_aeruginosa

I spent the next day sleeping, waiting, getting antibiotics and well waiting…for yet another dreaded ERCP to get a stent replaced and see if they could culture some of the bile to see if that is where the infection did indeed come from.

The day of the ERCP. I was tired, of course, feel like I have been beaten. My poor veins just can’t take any more pokes. I had more holes than a screen door. Off to sleep I went and the ERCP was done before I knew it. I was back in my room in more pain than when I left that was for sure, but nothing new. ERCP showed some strictures of course and blockage so the stent was put in place (needs to be changed in 4 weeks). For now, we continue the antibiotics and see where that takes us. Right at this moment it’s all about controlling and getting rid of the infection. So being careful is the name of the game. Considering I was supposed to travel next week for work, I needed to cancel that too. Too much risk involved.

IMG_0185

 

A few more days are on the outlook at this wonderful metropolis spa / hotel here at Baylor. But before I go I must get a PICC line to help infuse iv antibiotics for the next 14 days. So what is a PICC line?

Putting in the PICC line looks like it would hurt pretty bad. It doesn’t feel good but when you have to have something like this done you just go with it and realize it’s not too bad. Just try not to watch as they shove an 18 gauge tube from your arm inside your vein all the way to the base of your heart. That’s kinda freaky to see.

The PICC line is in. Now just waiting on more lab results to see if we have the bacteria enough under control to let me go home and finish killing it with iv treatments at home. And when this is done. Looks like I’ll be back down here for another ERCP to get this stent replaced. And so goes the saga.

But we stay positive, hopeful, encouraged by each and every one of your prayers and thoughts. I’m thankful for all of you.

 

And of course we couldn’t leave a post without a little something from these two!  🙂

IMG_0061

75 Comments

  1. Anne and Brooks

    June 10, 2016 at 8:19 pm

    Great read! We continue to pray for you. Much love to you and the family. Let us know if you need anything, we are here and glad to help.

  2. Cindy winston

    June 11, 2016 at 2:54 am

    I hate that you are going through all of this! I pray that this will all end soon and you will be able to lead a normal happy life. I live my Jon Boy!!!
    Love you bunches
    Aunt Cindy

  3. Awaiting moderation

    Thank you. Useful information!
    https://www.genericviagracubarx.com/
    book viagra order
    cheap viagra
    everyday viagra doseage
    viagra generic

  4. Awaiting moderation

    Thanks a lot. I value it!
    https://www.viagrawithoutdoctorntx.com/
    viagra sunday dispatch uk
    viagra without a doctor prescription
    what helps viagra work best
    buy viagra

  5. Awaiting moderation

    Thank you! Loads of knowledge.

    https://www.viagrawithoutdoctormsn.com/
    viagra lessen side effects
    buy viagra online
    how to get viagra fast
    generic viagra 100mg

  6. Awaiting moderation

    Incredible a good deal of very good facts.
    https://www.viagrawithoutdoctormsn.com/
    viagra compare cost
    generic viagra 100mg
    trusted generics viagra sildenafil
    generic viagra 100mg

  7. Awaiting moderation

    You mentioned this exceptionally well!
    https://www.viagrawithoutdoctorbnt.com/
    buy locally viagra
    viagra without a doctors prescription
    viagra latvia
    generic viagra 100mg

  8. Awaiting moderation

    Thanks, I enjoy this.
    https://www.viagrawithoutdoctorbnt.com/
    alternative keyword viagra
    buy viagra online
    red viagra
    viagra for women

  9. Awaiting moderation

    Seriously plenty of wonderful material!
    https://www.viagrawithoutdoctorbnt.com/
    cheap generic viagra substitute
    generic viagra online
    never mix viagra
    generic viagra 100mg

  10. Awaiting moderation

    Whoa a lot of superb knowledge.
    https://www.viagrawithoutdoctorbnt.com/
    viagra xanax phentermine online pharmacy carisoprodol
    generic viagra online
    viagra 50 mg quick disolve
    buy viagra online

  11. Awaiting moderation

    Regards! An abundance of material!

    https://www.viagrawithoutdoctormsn.com/
    premature ejaculation viagra
    viagra generic
    viagra and no perscription and us
    buy viagra

  12. Awaiting moderation

    You reported that effectively!
    https://www.genericviagracubarx.com/
    fast viagra
    viagra for women
    viagra sunday dispatch uk
    cheap viagra

  13. Awaiting moderation

    Cheers. Plenty of advice!

    https://www.viagrawithoutdoctorbnt.com/
    generic viagra discount cheap
    buy viagra
    viagra active ingredients
    viagra for women

  14. Awaiting moderation

    This is nicely expressed! .
    https://www.viagrawithoutdoctorntx.com/
    polish viagra
    generic viagra 100mg
    phizer viagra
    viagra 100mg

  15. Awaiting moderation

    Good write ups, Appreciate it!
    https://www.viagrawithoutadoctorsmim.com/
    viagra title object object
    cheap viagra
    viagra maxium dosage
    buy viagra online

  16. Awaiting moderation

    You mentioned this fantastically!
    https://www.genericviagracubarx.com/
    will viagra work for my wife
    generic viagra 100mg
    cheap generic kamagra kamagra uk viagra
    viagra generic

  17. Awaiting moderation

    Terrific write ups. Kudos.
    https://www.viagrawithoutdoctorbnt.com/
    viagra manufacturers
    viagra 100mg
    viagra from uk
    generic viagra online

  18. Awaiting moderation

    Thanks, Lots of facts.

    https://www.viagrawithoutdoctormsn.com/
    coverage insurance viagra health
    viagra generic
    tom kaulitz viagra
    viagra for sale uk

  19. Awaiting moderation

    Nicely put. Appreciate it.
    https://www.viagrawithoutdoctorbnt.com/
    pfizer viagra dosage 100 mg
    viagra without a doctors prescription
    viagra work for venous leak
    generic viagra

  20. Awaiting moderation

    Cheers! Lots of advice.

    https://www.viagrawithoutdoctorbnt.com/
    altenative for viagra
    generic viagra
    how long does viagra last for
    viagra for women

  21. Awaiting moderation

    Nicely put. Thank you.
    https://www.viagrawithoutadoctorsmim.com/
    viagra drug interactions
    cheap viagra
    viagra soft tabs cheap
    viagra 100mg

  22. Awaiting moderation

    Nicely put. Regards!
    https://www.viagrawithoutdoctorbnt.com/
    herb viagra
    generic viagra online
    video of people using viagra
    viagra 100mg

  23. Awaiting moderation

    You’ve made your stand extremely nicely!.
    https://www.viagrawithoutadoctorsmim.com/
    joe nemechek viagra
    viagra pills
    caverta cheap cialis generic viagra
    generic viagra online

  24. Awaiting moderation

    You have made your point pretty clearly!!
    https://www.genericviagracubarx.com/
    viagra without prescription scams
    viagra without a doctor prescription
    viagra substitute
    buy viagra online

  25. Awaiting moderation

    Lovely posts. Kudos!
    https://www.viagrawithoutdoctorbnt.com/
    daily record scotland viagra
    viagra 100mg
    calcium channel blocker and viagra
    generic viagra 100mg

  26. Awaiting moderation

    Amazing forum posts. Thanks.
    https://www.viagrawithoutdoctorntx.com/
    vitamin e viagra
    viagra 100mg
    viagra title object
    viagra pills

  27. Awaiting moderation

    Thank you! I enjoy this!
    https://www.viagrawithoutadoctorsmim.com/
    doctor millington tn viagra
    generic viagra
    viagra uk buy online
    buy viagra

  28. Awaiting moderation

    You made your point extremely clearly!!
    https://www.viagrawithoutdoctorntx.com/
    viagra online price iframe
    viagra online
    viagra and preature ejaculation
    buy generic viagra

  29. Awaiting moderation

    You made the point!
    https://www.viagrawithoutadoctorsmim.com/
    find sites search viagra
    viagra online
    drugs similiar to viagra
    buy viagra

  30. Awaiting moderation

    You actually revealed that very well.
    https://www.viagrawithoutdoctorbnt.com/
    why do women take viagra
    cheap viagra
    boost as viagra
    generic viagra online

  31. Awaiting moderation

    Kudos. I value this.
    https://www.viagrawithoutadoctorsmim.com/
    viagra cactus pcture
    viagra without a doctors prescription
    does circumcision make men need viagra
    generic viagra

  32. Awaiting moderation

    Appreciate it. Quite a lot of write ups.

    https://www.viagrawithoutdoctormsn.com/
    amoxi 2 free viagra
    buy viagra
    viagra samples free
    generic viagra 100mg

  33. Awaiting moderation

    This is nicely expressed. !
    https://www.viagrawithoutdoctorbnt.com/
    find viagra free sites computer search
    viagra without a doctors prescription
    side effects of levitre viagra
    viagra for women

  34. Awaiting moderation

    You revealed that perfectly.
    https://www.viagrawithoutadoctorsmim.com/
    viagra ace inhibitor carvedilol
    generic viagra 100mg
    viagra canada cheap
    viagra generic

  35. Awaiting moderation

    Reliable content. Thank you.
    https://www.viagrawithoutdoctormsn.com/
    buy viagra low cost
    buy generic viagra
    viagra treats children s lethal hypertension
    viagra without a doctor prescription

  36. Awaiting moderation

    Regards. Lots of postings!

    https://www.viagrawithoutdoctorbnt.com/
    viagra suisse
    viagra for women
    reviews of viagra cialis and levitra
    viagra for sale uk

  37. Awaiting moderation

    You have made your point very nicely!.
    https://www.viagrawithoutadoctorsmim.com/
    joke about breast implants and viagra
    buy generic viagra
    viagra steroids gif
    cheap viagra

  38. Awaiting moderation

    Thank you. Terrific information!
    https://www.viagrawithoutdoctorbnt.com/
    pic viagra woman
    buy viagra online
    methylone and viagra
    viagra without a doctors prescription

  39. Awaiting moderation

    Many thanks. Wonderful stuff!
    https://www.viagrawithoutdoctorbnt.com/
    ordering viagra without prescription
    buy viagra
    viagra rxs
    generic viagra 100mg

  40. Awaiting moderation

    Thank you, I enjoy this.
    https://www.viagrawithoutdoctorbnt.com/
    viagra mg
    viagra online
    viagra de ke esta echa
    generic viagra 100mg

  41. Awaiting moderation

    Fine forum posts. Many thanks!
    https://www.viagrawithoutdoctorbnt.com/
    viagra permanent side effects
    viagra 100mg
    viagra stuffy nose
    viagra online

  42. Awaiting moderation

    Appreciate it. An abundance of write ups.

    https://www.viagrawithoutdoctorbnt.com/
    what is viagra for women called
    generic viagra online
    compare generic viagra prices
    viagra online

  43. Awaiting moderation

    Nicely spoken really! !
    https://www.viagrawithoutdoctorntx.com/
    discount bulk viagra india
    generic viagra 100mg
    levitra cilias viagra
    generic viagra 100mg

  44. Awaiting moderation

    Helpful info. Many thanks.
    https://www.viagrawithoutdoctorntx.com/
    can caverject be used with viagra
    viagra for sale uk
    what is the viagra demographic
    buy viagra

  45. Awaiting moderation

    Wow lots of fantastic advice!
    https://www.viagrawithoutadoctorsmim.com/
    what is best viagra cialis
    viagra for women
    discount viagra levitra
    generic viagra 100mg

  46. Awaiting moderation

    Awesome forum posts, Many thanks.
    https://www.genericviagracubarx.com/
    viagra young healthy
    viagra without a doctor prescription
    cheapest price viagra deliverd uk
    generic viagra online

  47. Awaiting moderation

    You definitely made your point!
    https://www.viagrawithoutdoctorbnt.com/
    can viagra be injected
    viagra without a doctors prescription
    viagra and thromocytopenia
    buy viagra online

  48. Awaiting moderation

    You said it very well.!
    https://www.genericviagracubarx.com/
    photo collections porn coitus viagra
    generic viagra
    what is female viagra
    buy generic viagra

  49. Awaiting moderation

    Amazing plenty of amazing advice.
    https://www.viagrawithoutdoctorntx.com/
    hours between viagra doses
    buy viagra
    how viagra works
    viagra for women

  50. Awaiting moderation

    Wonderful facts. Regards!
    https://www.viagrawithoutdoctorntx.com/
    who makes viagra
    viagra pills
    viagra turkey
    cheap viagra

  51. Awaiting moderation

    Cheers, An abundance of write ups!

    https://www.viagrawithoutdoctormsn.com/
    low cost viagra no subscription required
    viagra online
    viagra 1.79
    generic viagra 100mg

  52. Awaiting moderation

    Nicely put. Appreciate it.
    https://www.viagrawithoutdoctorbnt.com/
    secondary pulmonary hypertension viagra
    buy viagra
    otc alternitives for viagra
    buy viagra

  53. Awaiting moderation

    Nicely voiced really! .
    https://www.viagrawithoutdoctorbnt.com/
    over the counter viagra walgreens
    viagra 100mg
    girl on viagra
    viagra without a doctor prescription

  54. Awaiting moderation

    Valuable facts. Many thanks!
    https://www.genericviagracubarx.com/
    storing viagra
    viagra online
    back pain search find viagra found
    viagra without a doctor prescription

  55. Awaiting moderation

    Thank you! Loads of content.

    https://www.viagrawithoutdoctorbnt.com/
    edinburgh 17 find viagra sites pages
    viagra generic
    viagra and antifungals
    viagra pills

  56. Awaiting moderation

    Incredible plenty of wonderful knowledge.
    https://www.viagrawithoutadoctorsmim.com/
    find search viagra free computer sites
    generic viagra 100mg
    craigslist toronto viagra
    generic viagra 100mg

  57. Awaiting moderation

    Good advice. Regards!
    https://www.viagrawithoutadoctorsmim.com/
    viagra physicians in houston
    viagra for sale uk
    cheapest viagra prices canada
    generic viagra

  58. Awaiting moderation

    Kudos! I appreciate it!
    https://www.genericviagracubarx.com/
    peter dunn viagra
    viagra for sale uk
    where can i buy cheap viagra
    viagra for women

  59. Awaiting moderation

    Wow plenty of wonderful data!
    https://www.genericviagracubarx.com/
    viagra cataracts
    buy viagra online
    book buy online order viagra
    viagra pills

  60. Awaiting moderation

    Thanks, Quite a lot of advice.

    https://www.viagrawithoutdoctorbnt.com/
    viagra cialis levitra canada
    viagra for women
    viagra race car screen saver
    viagra for women

  61. Awaiting moderation

    Cheers, Valuable information!
    https://www.viagrawithoutadoctorsmim.com/
    viagra com
    generic viagra
    viagra light switch
    viagra online

  62. Awaiting moderation

    Beneficial stuff. Thanks.
    https://www.viagrawithoutdoctorbnt.com/
    mens hotrod viagra
    generic viagra 100mg
    citrulline viagra
    generic viagra 100mg

  63. Awaiting moderation

    Fantastic forum posts. Regards!
    https://www.viagrawithoutdoctorbnt.com/
    viagra cuddly chemical
    generic viagra
    which works better cialis or viagra
    cheap viagra

  64. Awaiting moderation

    Great posts. Regards.
    https://www.viagrawithoutadoctorsmim.com/
    genaric viagra cealis ect
    viagra 100mg
    viagra and blood pressure meds
    viagra for sale uk

  65. Awaiting moderation

    Regards. A lot of information!

    https://www.viagrawithoutdoctormsn.com/
    free sex using viagra
    buy viagra online
    pleasure viagra
    viagra generic

  66. Awaiting moderation

    Nicely put, Kudos.
    http://viagrawithoutadoctormsn.com/
    viagra in nashville
    viagra without a doctors prescription
    natural substitutes for viagra
    viagra for women

  67. Awaiting moderation

    Nicely expressed indeed. !
    http://viagrawithoutadoctorsntx.com/
    cleaning viagra
    viagra 100mg
    strengths and weaknesses of viagra
    viagra for women

  68. Awaiting moderation

    You mentioned this perfectly!
    http://viagrawithoutadoctormsn.com/
    daily viagra
    viagra generic
    viagra joks
    generic viagra 100mg

  69. Awaiting moderation

    Thank you. I enjoy it!
    http://viagrapego.com/
    macular degeneration viagra
    viagra for sale uk
    viagra safe for ladies
    generic viagra 100mg

  70. Awaiting moderation

    You actually mentioned that wonderfully!
    http://viagrawithoutadoctorsntx.com/
    do lovenox and viagra go together
    generic viagra 100mg
    viagra without prescription scams
    buy viagra online

  71. Awaiting moderation

    Cheers! Lots of tips!

    http://viagrawithoutadoctormsn.com/
    pfizer viagra free trial
    viagra for women
    young men using viagra
    cheap viagra

  72. Awaiting moderation

    Terrific posts. Thank you.
    http://viagrawithoutadoctormsn.com/
    buy generic online viagra
    generic viagra 100mg
    viagra not working and why
    generic viagra

  73. Awaiting moderation

    Awesome material. With thanks!
    http://viagrawithoutadoctorsntx.com/
    chicago viagra
    viagra for sale uk
    viagra exstacy
    cheap viagra

  74. Awaiting moderation

    You made your point.
    http://viagrawithoutadoctorsntx.com/
    girl viagra
    viagra for women
    viagra help women
    generic viagra 100mg

  75. Awaiting moderation

    Thanks a lot. A lot of info!

    http://viagrapego.com/
    viagra overseas
    generic viagra 100mg
    viagra cheap express
    viagra without a doctor prescription

Leave a Reply

Your email address will not be published.

*